A New Diagnosis

We just had to update Facebook Twitter the new website and Go fund me as we just got a letter today saying that they have found a new diagnosis from his last MRI scan. He does not have Meningoencephalitis……

He has worse, much worse; Acute necrotizing encephalopathy of childhood (ANEC) is a rare condition. ANEC is a serious and life threatening complication of simple viral infections. I feel sick to the stomach that my little boy has such a rare illness.