Oliver Has A Poorly Peg

Oliver Has A Poorly Peg

Oliver in the last couple of days has had an infection in his feeding peg, but he is getting better in his tummy area now and is starting to smile again. Keep strong Oliver, we all love...

Just A Little Update

Oliver remains an inpatient at the JR; He was admitted 20 February with status epileptics and respiratory arrest. The initial clinical presentation suggested an acute meningoencephalitis. Doctors say that Oliver is developing a complex motor disorder with spasticity,...
Time For A Little Stretch

Time For A Little Stretch

Was not so bad overnight. He woke up making a fair bit of noise, checked him and he was sweaty, so nappy changed and t-shirt changed and he nodded off straight after. In the morning I got up, Olly woke briefly – I watched his right arm go straight up as if he...
What A Hot Hot Day

What A Hot Hot Day

Oliver had a good night. He was awake a little this morning and went to sleep again; now watching CBBC. We are going to take him out later to the park but going to get some sun screen first; don’t want him burning. His feeds are now connected to the chair so...
Buggy Time Busy Time

Buggy Time Busy Time

The buggy arrived about 2:30 today, he looked really relaxed in it. His right arm was resting on his thigh. Oliver then had some physio and now he is asleep; been a very hot day which makes you feel...

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